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Table 5 Involvement of patients’ associations in designing and planning clinical trials

From: Knowledge and attitudes towards clinical trials among women with ovarian cancer: results of the ACTO study

 

No. (%)

Should the representatives of citizens and patients be actively involved in the design and planning of a clinical trial?

 Yes

237 (71.2)

 No

96 (28.8)

 Missing

15

If Yes, what role have representatives of citizens and patients (select 2 answers)

 Improve the information given to patients about the trial

96 (20.9)

 Facilitate patients’ participation in the trial

93 (20.3)

 Make suggestions for clinical trials of real benefit to patients

91 (19.8)

 Help with financing the trial

56 (12.2)

 Discuss the clinical trial plan to make it better

55 (11.9)

 Communicate the trial results

39 (8.5)

 Act as the spokesman for patients during analysis and discussion of the results

29 (6.3)